Wednesday, December 15, 2010

Support for People with Pseudotumor Cerebri and Other Rare Disorders

My name is Ginger.  I have been living with Pseudotumor Cerebri (PTC) for about 5 years now.  I decided to start this blog for the purpose of giving hope and support to other people with this condition, and even others that are struggling to find a diagnosis for an uncommon disorder.  I am also hoping to raise awareness for PTC as it is not well known (even amongst the medical profession as I have discovered.)

I have a wonderful family that are supportive and love me very much, however I have found over time, that the only people than can truly understand what I have experienced and what I am currently living through is other people with the condition.  Sometimes it is just nice to know that someone else knows EXACTLY how you feel.  Since we seem to be few and far between, I hope this will become a place to connect, share, and possibly even heal.  I hope all who read this find it inspiring on some level.

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